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韩冰峰, 袁千里, 刘姜, 刘雅琼, 黄宁华, 崔富强. 中国4省慢性乙型肝炎患者反歧视法律及政策知晓情况及维权意识[J]. 中国公共卫生, 2022, 38(3): 262-265. DOI: 10.11847/zgggws1121897
引用本文: 韩冰峰, 袁千里, 刘姜, 刘雅琼, 黄宁华, 崔富强. 中国4省慢性乙型肝炎患者反歧视法律及政策知晓情况及维权意识[J]. 中国公共卫生, 2022, 38(3): 262-265. DOI: 10.11847/zgggws1121897
HAN Bing-feng, YUAN Qian-li, LIU Jiang, . Knowledge about anti-discrimination laws and regulations and assertion of rights among chronic hepatitis B patients in four provinces of China[J]. Chinese Journal of Public Health, 2022, 38(3): 262-265. DOI: 10.11847/zgggws1121897
Citation: HAN Bing-feng, YUAN Qian-li, LIU Jiang, . Knowledge about anti-discrimination laws and regulations and assertion of rights among chronic hepatitis B patients in four provinces of China[J]. Chinese Journal of Public Health, 2022, 38(3): 262-265. DOI: 10.11847/zgggws1121897

中国4省慢性乙型肝炎患者反歧视法律及政策知晓情况及维权意识

Knowledge about anti-discrimination laws and regulations and assertion of rights among chronic hepatitis B patients in four provinces of China

  • 摘要:
      目的  了解中国慢性乙型肝炎(乙肝)患者反歧视法律及政策知晓情况、维权意识及其相关因素,为探究提高反歧视维权意识策略提供依据。
      方法  2017年1 — 4月采用自制问卷调查中国4个省份的797例慢性乙肝患者,对3项反歧视法律及政策的了解情况和维权意识,使用χ2检验探究法律及政策知晓情况与维权意识的关系及可能的相关因素。
      结果  分别有39.55 %(297/751)、40.21 %(302/751)、56.99 %(428/751)的患者知晓该3项法律及政策,仅9.46 %(73/772)的患者有维权意识,仅0.91 %(7/772)的患者曾真正请求过相关组织或机构帮助解决问题;至少知晓1项法律及政策的慢性乙肝患者的维权意识是不知晓者的2.78倍,二者维权意识差异有统计学意义(χ2 = 20.406,P < 0.001);居住在北京地区、31~40岁、更高学历、医务工作者、学生、教师及科研人员较其他患者有更高的法律及政策知晓程度(P < 0.05),高学历的患者有更高的维权意识,且差异有统计学意义(P = 0.006)。
      结论  虽然知晓乙肝反歧视法律及政策的慢性乙肝患者数量较多,但是有维权意识的人较少,真正付诸行动者更少。需要提高公众整体知识水平,在就业和入学时提高法律及政策知识普及率,带动维权意识提高和进步。

     

    Abstract:
      Objective  To examine the knowledge about anti-discrimination regulations and awareness on patient rights protection and their associated factors among chronic hepatitis B (CHB) patients in China, and to provide evidences for enhancing the awareness of anti-discrimination actions.
      Methods  We selected four province-level regions with different CHB prevalence as study sites and recruited 797 CHB patients in one or two hospitals in each of the four regions with convenient sampling for a face-to-face interview on the awareness of the three anti-discrimination laws and patient rights protection using a self-designed questionnaire during January – April 2017. Chi-square test was used to explore the relationship between the awareness and their associated factors.
      Results  The proportions of the respondents reporting the awareness of one of the three anti-discrimination laws were 39.55% (297/751), 40.21% (302/751), and 56.99% (428/751), respectively; only 9.46% (73/772) of respondents reported being aware of patient rights protection and 0.91% (7/772) of the respondents reported asking for help from relevant organizations or agencies to solve discrimination-related issues. The respondents being aware of at least one of the three laws reported a 1.78 times higher ratio of having consciousness of assertion of rights compared to the respondents not being aware of all the laws (χ2 = 20.406, P < 0.001). The respondents living in Beijing city, aged 31 – 40 years, with higher education, being medical workers, students, teachers and researchers reported a significantly higher awareness rate of anti-discrimination laws and regulations than other respondents (all P < 0.05). The respondents with higher education had a significantly higher consciousness of assertion of rights (P = 0.006).
      Conclusion  Although many chronic hepatitis B patients in China were aware of anti-discrimination laws, but a small number of them had the consciousness of assertion of rights and few of them took actions related to patient rights protection. The results suggest that educations on anti-discrimination protecting CHB patients should be promoted among the public.

     

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